September 15, 2020

-

 September 15, 2020


As of last night we've been in the hospital for two weeks.  I was told today Marlon will be discharged on Thursday.  More treatments Thursday and then we continue at home with returns for more treatment and checkups.  I was told that if all goes according to plan treatment continues for 2 years and 3 months.

Marlon slept a bit better last night.  After breakfast this morning Mindy and Tori from physio took him to play some Xbox.  A bit more physical, with a fair bit of movement.  Marlon came back from that exhausted.

I realized today that while his spirits are up, he is back to talking a mile a minute about anything, and he has a good appetite, he just doesn't feel good.  Sometimes worse than others.  

I bought him pizza for lunch which he happily gobbled down several pieces.  Then I took him outside.  I make him walk a little bit on the grass and then push him around for a bit.  He complains a lot.  He doesn't feel good and the jostling of the wheelchair isn't comfortable.

Again at supper he took the new medication.  Unfortunately by supper time he is not feeling great and the medication wasn't ready so we had to wait.  Added stress. He doesn't want to eat before getting the pills in. He says not to make a big deal about him taking the pills because he doesn't want it to be a big deal.  But the nurses, doctors, and support staff are impressed with his accomplishments.

Again, a couple of hours after taking the pill, he is feeling really bad and nauseous and in pain.  A few times he is leaning over the container thinking he may be sick.  He keeps it in and we get ready for bed.  I hear his moans and see his restlessness that tell me he is still uncomfortable even though he is sleeping.

He has also struggled with how much liquid (approx 1500 ml) they expect him to drink. By bedtime he is crying that he is just too full of liquid.

I feel for the guy.  Not easy what he is going through and sometimes the frustrations and emotions come out and sometimes he just trudges on.  And that is what we all do, we keep on keeping on…

Comments

Post a Comment

Popular posts from this blog

July 7, 2022

-
Image
On May 23rd, the week before the chemo that weakened Marlon enough to put him in the hospital, the dog, the boy, and I drove to Montreal. (I am aware of the use of the word 'go' when writing. In German, the verb 'to go' means walking. You don't 'go' in a car.) Before we left, as I was packing up the car, I noticed a fair sized spider web between the driver's side view mirror and the car. I left it alone, figuring the wind would blow it off. It was so nice to see Linsy and Moira and spend time with them. I have missed having Linsy around. It was neat that, when we got there, Olivia, Jamey, and Roka, their dog, were there. They live 15 minutes away from us but were there visiting their son. Mina was definitely happy to see Roka (and all the others too).   Mina got used to walking on sidewalks and being in the city. Other people and dogs, not so much. Moira has given me a belt with a dog lead on it for hands-free walking. It worked but was even bett...
Read more

November 10, 2022 (2)

-
Image
Today, I dropped Marlon off at outdoor school and met up with a friend I have only seen a handful of times in the last 20+ years.  She was in the area for the passing of a family member. i then went for a walk with Mina.  I watched and she poised herself in hunting position and pounced.  I saw a squirrel run up a tiny little tree but also heard this pitiful whining.  At first, confused, I wondered if she had pounced on a nest in the ground.  But the dog ran to me, crying and whining, holding up her paw.  We were a ways from home and she hobbled carefully home after we sat for a while and she calmed down.  She will often run the perimeter of fields, running this way and that.  I saw her longing to run the field as we made our way back but she was uncomfortable and limping. A short while later, I went to pick up Marlon and watched in amazement as he hobbled to the car.  Yes, he had hurt his foot within an hour of the dog hurting herself.  ...
Read more

July 5, 2022

-
Image
Decision was made that Marlon was to go check blood counts on Monday.  We drove down to Hamilton together, quick finger poke, and then leave again.  A couple of times, we drove around the parking garage for almost a half-hour looking for a spot, but Monday was smooth.  Busy place. Blood counts are good so dental work begins.  Marlon's doctor was impressed with the dentist when she spoke with him last week.  In support, I sit next to him in the dentist's room and hope my own anxiety, discomfort, and fear don't affect him. Halfway through the drilling of four teeth which was quite intense, they took a little break to check in with Marlon and see if he was up to continue.  He agreed to do more but said he was most concerned about the tastes of the filling material.  With the pain and discomfort of the first part, one would think that would be the least of his worries but he is very sensitive to taste and flavour.  As it turned out he didn't gag or re...
Read more